Walking with Oxygen Campaign - Living life with Oxygen

Here are what people are saying about various issues. We take their words and let them speak. Not statistics or KPI's but the experience of patients:-

Weight of "lightweight" cylinders severely impacts many patients.

I know what you mean about the weight.

Its a real struggle to cart those around (DD), I do have a black back pack to carry it about but find if i put it on my back the next day I feel as if I've been to the gym the day before as my shoulders are killing me and I have knots - defeats the purpose if you ask me.

And people have said why doesn't your mum carry it about for you but why should she? the whole point of these things is to be independent, I don't want to rely on other people to do things for me and if my mum wasn't with me who would carry it?

Another point is maybe its just me but I don't feel any oxygen coming out of the DD, even at 4L especially when I'm walking, I could prolly blow faster myself (not great considering I have 13% lung function) so I don't feel it does me much good, I have recently signed up for shop mobility and feel its a godsend if I'm on my own.
 

yeah, well done, i basically struggle without o2 the majority of the time when walking cos when im out i cant carry the bottles, and i dont want to be tied to someone else the whole time. they said i could only have liquid o2 if i am on it for more than 8hrs a day, and i dont need it when sitting so it doesnt apply. in the summer when i was using it all the time they left me without portable cylinders and/or with faulty equiptment numerous times, once i specifically told them, with 2 days notice, i needed it for the journey to hospital and they bought it round four hrs later than they said they would.

i have a conserver, just not very helpful with regards to the weight, plus the tubing blows off!

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Last modified: 08/30/07